Blessed are the Pure in Heart

Ethan’s Mom: We have participated in baby dedications for each of our five children. Our church allows for special moments to present the new baby, acknowledge the family’s commitment to teach the child about God, and ask that the congregation participate in the spiritual formation of the child. Some of the details differ based on the pastor or children’s minister involved, but they always included a presentation of a certificate and a tiny New Testament. Early on, I asked our children’s minister at that time if Ethan could still get a New Testament, and she assured me he could and suggested we do a full baby dedication for both boys, just as we would if Ethan was still living.

One thing we had to decide in preparing for the dedication was what Bible verses we wanted to designate as special “life verses” for each baby. This can be a bit intimidating under normal circumstances, but finding an appropriate verse for Ethan’s dedication was even more daunting. Ethan’s dad was the one who came up with the one that felt right:

“Blessed are the pure in heart, for they shall see God.”

Matthew 5:8

As with many things in the Bible, there are multiple layers to this verse. The Beatitudes in particular are more complex than they appear. This verse reminds us that Ethan, being pure in heart, is in the presence of God right now. He can see God.

But I hadn’t considered how this verse might also speak to another way Ethan’s life and death has changed me until studying the Beatitudes at BSF earlier this year.

I believe I have written before about counseling and how that has been an important part of healing for me. One thing that I particularly appreciate is how my counselor pushes me to grow more comfortable with the mystery of God. She has helped me work through anger that was preventing me from seeing ways that “heaven and earth collide,” as she says. While anger is an expected and understandable emotion, getting stuck in it leads to bitterness. When bitterness was taking root in my heart, I was blinded to the miracles that were happening around me, even in the darkest of valleys.

When giving his BSF lecture on Matthew 5, my brother-in-law compared looking for God with sin in our hearts to looking through a dirty windshield. When we repent of the sin which clouds our view, we can see God more clearly. That illustration has stayed with me because it was such an accurate description of my own experience. The BSF notes beautifully describe what it is like to see through a “clear windshield”:

“The pure in heart will see God today. They find Him in the Scripture they read daily. They look for God’s handiwork in daily events and nature. They recognize God’s image imprinted upon their neighbor, their spouse, their child, and themselves. They recognize God’s Spirit moving in the seemingly mundane and in miraculously life-changing moments.”

Here is a particularly mundane example from recent memory. One day during the heavy season from January to March, I went on a much needed walk. It was one of those walks that ended up having a lot of running portions to work out some pent up emotions, and I was getting low on both energy and hope as I huffed and puffed up a hill at the end of my route. A fellow runner approached and called out to me, “This hill sucks, but you’re doing great!” Maybe it sounds strange, but I immediately had a feeling that this message of encouragement was not really about running up a hill, nor was it really from a fellow runner. I truly believe it was a message from God to encourage me through the coming months of intensified grief, which it did.

Being a mother to Ethan has taught me more about seeing God than any other single experience in my life. I cannot look at the falling leaves, seeds, flowers, dragonflies, or lightning bugs in the same way again. I catch my breath when a train whistles at the exact moment I need to hear one. There are simply too many examples to list.

A precious baby with a hole in his heart has helped me learn about the importance of being pure in heart and looking for God everywhere, even in the deepest pain and darkest nights. Truly, this is our Father’s world, and God does “shine in all that’s fair” — if we have hearts to see.

“This is my Father’s world,
And to my list’ning ears
All nature sings, and round me rings
The music of the spheres.

“This is my Father’s world:
I rest me in the thought
Of rocks and trees, of skies and seas—
His hand the wonders wrought.

“This is my Father’s world:
The birds their carols raise,
The morning light, the lily white,
Declare their Maker’s praise.

“This is my Father’s world:
He shines in all that’s fair;
In the rustling grass I hear Him pass,
He speaks to me everywhere.

“This is my Father’s world:
Oh, let me ne’er forget
That though the wrong seems oft so strong,
God is the ruler yet.

“This is my Father’s world,
The battle is not done:
Jesus who died shall be satisfied,
And earth and Heav’n be one.”

A World Where There Are Octobers

Ethan’s Mom: The world has been so, so crazy this year. I haven’t posted anything since the pandemic erupted. The NBA cancelled the rest of their season on March 11th, the day after we marked three years since Ethan’s death. To me, that was the first time I really noticed something major was going on, possibly because for the first two weeks of March, my brain is in 2017 more than in the present time. Usually, it takes the rest of the month to work through the feelings and flashbacks before I start to feel normal again. However, this year instead of a period of recovery, I found myself in an impromptu homeschool situation with 4 kids, aged 3 through 9, with limited supplies of milk, bread, and toilet paper.

I told myself this was no big deal. After all, no one I loved had died. That’s what you think after you’ve lived through child loss; all other crises just pale in comparison. We were safe, my husband had a stable job that easily adapted to working from home, and I had more time with the kids. It was a huge blessing that our spring weather was perfect this year — we spent hours on the trampoline and on after-dinner family walks. Of course, I was worried for friends in the medical community, my “mature” family members and friends, and others whose world was shaken far worse than mine. But how long would this really last anyway? I thought surely this virus would be behind us by time to return to school, and until then, I would do my best to steward this unexpected season of cancellations and extra togetherness.

We all know that didn’t happen. As the pandemic dragged on, I began to really feel the weariness and feared there was no end in sight. Indeed with the summer came rising virus levels in our state, and vigorous debate about school re-opening was everywhere. Just like everyone else, I was distraught over making the “right choice” for our children. The constant internal debate was exhausting. After considering all options, we made a decision. Returning to school five days a week is definitely the best decision we can make right now for our individual children and family, we said. OK, let’s do this. We are all in.

Oh wait, make that 2 days a week, as the school system decided a week before the pushed-back starting date that we would be on a staggered schedule. On those days, everything about “back to school” looks different anyway. No visitors are allowed, so I definitely won’t be meeting my “eat lunch at school” every month goal. In fact, the kids aren’t even going to be eating in the cafeteria. No mystery readers or birthday treats. No playground for my little kindergartener to look forward to exploring. Masks hiding all the smiles from teachers and friends.

Most days, I feel like I am in a Google classroom twilight zone that will never end. This feeling of neverending-ness was reinforced when the week before our 2nd attempt to return to school 5 days a week was cancelled by the school system. They backpedaled to 4 days a week for elementary, no change in staggered schedules for middle and high school. So tomorrow (fingers crossed!) my kids will double their days at school and will be back full time by mid-October. Maybe. I hope.

We were also supposed to return to onsite worship at our church this week. We had one other false start earlier in the summer, so I was not really holding my breath. In fact, we received word late Saturday afternoon that all of the activities, including live and streamed worship services, were cancelled due to 2 staff members testing positive for coronavirus. There have been some major changes at our church this summer. One change was particularly painful for our immediate family: we are saying goodbye to a minister who ran into the darkness and sat with us in our grief when so many were scared to enter in. When I heard the news of this development, I felt the ground shift under my feet again. Nothing feels right, and the future is totally uncertain.

Other things we depend on to mark the seasons of our lives are missing or very different this year. Football is delayed and for a while, it looked like my husband’s beloved Cornhuskers wouldn’t even play a down this year. No pumpkin patches, and no school field trips to the farm. Everything else in our yearly, monthly, and daily routines have changed so much that, subconsciously, I was waiting for someone to cancel fall and leave us in the humid, hazy days of a never ending summer.

But today when I opened the door on my way to visit Ethan’s grave for the first time in a while, a cool breeze greeted me. I decided to swing by Starbucks to pick up a pumpkin spice latte on the way to visit my little boy. Starbucks is a rare treat as I just cannot bring myself to pay that much for coffee, as I am a relatively new and unsophisticated coffee drinker. But today, driving with the windows down and the sunshine pouring through the trees, it was money well spent. I just kept thinking to myself as I drove, “It actually feels like fall is coming, it seemed like it would never come.” My heart felt lighter than it has in days, just with the dropping of the temperature and humidity.

Like one of my literary heroines, Anne of Green Gables, I am so glad I live in a world where there are Octobers. I praise the God who hung the sun and placed the earth in a specific orbit around it in order to provide us with changing seasons and fresh starts. There is so much symbolism in creation that speaks to eternal truths. Each season brings its own joys and challenges and revelation of God’s heart toward us. Fall brings images of the farmer bringing in his harvest. The light is sharper and more precious as the days shorten. Cozy clothing wraps us in warmth. Even jack-o-lanterns can be used as a metaphor for the gospel of Jesus Christ, an activity my first grade Sunday school kids enjoy every year.

But most of all, autumn reminds me that God keeps His promises even when it seems like this life is a never ending stretch of loss and heartache. If not for autumn and winter, how would we know the joy of springtime, as the earth wakes from its sleep into newness of life? We can lean into this season because it doesn’t last forever, because spring is indeed coming. No matter if all the man-made ways we mark the calendar do not come to pass, God will bring the change of seasons and, one day, the redemption of His entire creation. Just as fall finally arrived when I had almost given up, spring will come again, too. In the same way, at the exact right time, Jesus will come. He keeps His promises — all of them.

You Keep Your Promises by JJ Heller

Sandals in the closet
Jackets by the door
Orange, red, life and death
Scattered ’round the feet of the sycamore
The waiting hands of winter
Catch us when we fall
Is it just me? I can’t believe
The green of spring was ever here at all

You keep Your promises
You keep Your promises
I might not see it yet
You keep Your promises

Everyone I care for
Just like every perfect dream
Withers, fades, and drifts away
Feels like we’re all falling with the leaves

You keep Your promises
You keep Your promises
I might not see it yet
You keep Your promises

There is hope within the breaking of the heart of every seed
And I know You feel the aching at the end of all good things
I believe in restoration, I believe that You redeem
Because I know somehow the sycamore will bloom again in spring

You keep Your promises
You keep Your promises
I might not see it yet
There will be life again
You keep Your promises

Lament for the End of Summer

Ethan’s Mom: In one week, my children here on earth will go back to school — all four of them. As I have mentioned in a previous post, back-to-school time is difficult for me, and this is the year when I will send Ethan’s twin brother to preschool for the first time. There was no decision on whether to place them in the same or different classes (I would have totally advocated the same class for as long as possible). They won’t be known as “the twins” to their classmates’ parents. There are no matching backpacks waiting to be filled with lunchboxes. Would Ethan have loved PB&J as much as his brother or would I have to pack them different food? How cute would our three musketeers have looked marching down the preschool hallway together to their 2K and 4K classes?

Summer is drawing to a close, and I am sad to see it go. We have had a nice balance of fun adventures and lazy times this summer. Nothing makes me as happy as being with my people, even though they often drive me crazy.  I am not ready for it to end.

I don’t want to fill out all the back to school forms listing siblings and ages. I don’t want to make small talk at parents’ night or meet the teacher. I don’t want to leave Ethan further behind.

But I just recently realized that it’s not just back to school looming on the horizon. I’m at the top of the hill on the roller coaster, closing my eyes before I hurtle down and wishing I never got on this ride.

The hot days of August will fade a little bit and we’ll arrive at my husband’s favorite season — FOOTBALL. We will all dress in our matching college football fan gear, except Ethan. Ethan bear will have to represent on his behalf. The glorious sunshine of October is next, and the leaves on Ethan’s trees will turn colors and fall. The talk will turn to costumes and candy, and I will miss dressing up one precious little boy. The decorations and scariness I hate about Halloween will return. Then we slide into November with its Thanksgiving feasts and handprint turkeys, but the only handprint I will ever have from Ethan was made at the funeral home. Then Christmas and all that holiday cheer, balancing the desire to celebrate with my family here with my need to grieve Ethan’s absence during the “most wonderful time of the year.”

Then the calendar will roll over to a New Year, another one without my little caboose. Winter marches on, and I will cringe every time the weather forecast includes the chance of ice or school is cancelled for snow. We will celebrate the twins’ birthday, full of joy for the gift of their lives even though one was far too short. Finally, the final drop through the 63 days until the anniversary of the worst day of our lives. At the bottom, I will need several weeks to catch my breath and feel the adrenaline dissipate.

Guess what? That puts me back at summer. I miss my baby every single day but there are less of the emotionally intense dates to deal with during the summer. I think that is really what has been bothering me. I am not ready to face any of it again. The first year was, as you would expect, agonizing. People warned me the second year would be just as bad, and it was. But it was bad in totally different ways. I don’t know what to expect in year three, and I don’t like surprises.

I first listened to the music of the Gray Havens at the inComplete Retreat I attended last fall. I laid on the pier in the sunshine with my legs dangling into the lake as the music washed over me that afternoon. I have been reminded of this song over the past week. I can’t get off the roller coaster, but I know one day it will end, even if the ride seems endless now. I am getting better at recognizing the provisional grace given to us along the journey, and I have to believe more is coming our way in the months and years ahead.

Take This Slowly by the Gray Havens

“If I took all that I got
And spread it out on this table
It might not seem like alot
A once glimmering joy
Slowly fading from view
All the change in my pockets, not enough
And this picture of you
Still I’ve heard all that I have
In the moment is hardly a sign
Of everything coming my way
I believe when I need it, it will be mine

So let’s take this slowly
All I need is coming
But it’s just beyond what I can see
So if my eyes press forward in fierce alarm
Just turn my head back to see
To see how we got this far
And I’ll be alright

“I’m not asking for mountains of riches
No silver or gold
Don’t need fame or fancier things
I can’t take when I go
I’m just asking for grace
Grace to carry on
Grace to take joy at my place at the table
And the rock that it’s standing on
Still I’ve heard all that I have
In the moment is hardly a sign
Of everything coming my way
I believe when I need it, it will be mine

So let’s take this slowly
All I need is coming
But it’s just beyond what I can see
So if my eyes press forward in fierce alarm
Just turn my head back to see
To see how we got this far
And I’ll be alright

“And even when I’m broke down
Even when what I’ve got now
Is falling faster down beneath the cracks
And I don’t know when it’s coming back around
Even then I’ll be calling out louder
Loud enough to wake ’em up
Believing I believe I will see it done
I believe what I will hold
What I hold will be enough
Will be enough

“So let’s take this slowly
All I need is coming
But it’s just beyond what I can see
So if my eyes press forward in fierce alarm
Just turn my head back to see
To see how we got, got this far
And I’ll be alright
It’s gonna be alright
It’s gonna be alright
It’s gonna be alright.”

Addendum 8/7/19:

We met the teachers today, and there was grace for that. I am sad, no doubt, but not despairing to the point I cannot also hold the sweet excitement of my 4 kids that had teachers to meet and classmates to greet. It went better than I expected, and I have hope that tomorrow and Friday will as well.

While this grief journey truly changes from moment-to-moment, God’s presence with us does not, no matter how it feels on any given day. Isaiah 43:2 was the “verse of the day” in my email this morning. “I will be with you when you pass through the waters, and when you pass through the rivers, they will not overwhelm you. You will not be scorched when you walk through the fire, and the flame will not burn you.” There truly is grace for each moment we walk in the Shadowlands. I want to end this post with another sweet song of God’s provision, Enough by Sara Groves. I pray you know somewhere down in your soul that God’s grace is enough for you today and there will be enough tomorrow.

“Late nights, long hours
Questions are drawn like a thin red line
No comfort left over
No safe harbor in sight

“Really we don’t need much
Just strength to believe
There’s honey in the rock,
There’s more than we see
In these patches of joy
These stretches of sorrow
There’s enough for today
There will be enough tomorrow

“Upstairs a child is sleeping
What a light in our strain and stress
We pray without speaking
Lord help us wait in kindness

“Really we don’t need much
Just strength to believe
There’s honey in the rock,
There’s more than we see
In these patches of joy
These stretches of sorrow
There’s enough for today
There will be enough tomorrow.”

Planting Seeds

SERVICE_BERRY_TREE

Ethan’s Mom: Two years ago today (March 15th), I buried my son.

There have been so many hard memories floating to the front of my mind this week. Many of them are of dark and terrifying moments. A few from today were moments of grace and beauty in the midst of extreme tragedy. The day of the funeral dawned bright and clear. It was an unseasonably cold day but the sun was shining brightly, and I was so grateful it wasn’t raining or gloomy as it had been the preceding days.

Today was another sunny March day, only it was about 20 degrees warmer. It was a great day to be out in the backyard, and the kids and I ended up doing a spur of the moment gardening project. I have been fascinated by gardens ever since two special friends from church made an “Ethan Garden” for us. They took an overgrown, messy garden bed in our backyard and transformed it into an abstract heart shaped area that includes the hydrangea and calla lilies that our parents sent to the funeral home. Last fall, I made my first attempt at growing something back there, and a few weeks ago, sunny yellow daffodils started peeking out from around the perimeter. I look out the back windows countless times a day to gaze at my cheery buttercups.

Today was less about the anticipated results and more about the act of digging, clearing, and planting connecting me to the bigger picture. I don’t know what kind of blooms we will see from the wildflower mix purchased from the dollar store, but I know preparing the soil and planting the seeds was what my heart needed to do today.

The three bigger kids helped me clear out and till up a patch of earth back under their little treehouse platform. We dug and pulled weeds but we also found a few “creatures” as my daughter kept calling them. We sprinkled seeds and talked about how they would grow into flowers. We watered them in while talking about what kind of butterflies we might see, as the box assured us that the included flowers are favorites among butterflies.

The daffodils and the wildflower seeds brought to mind this sweet hymn that I learned in college. Who knew the words would become so meaningful to me almost 20 years later?

In the bulb there is a flower;
in the seed, an apple tree;
in cocoons, a hidden promise:
butterflies will soon be free!
In the cold and snow of winter
there’s a spring that waits to be,
unrevealed until its season,
something God alone can see.

There’s a song in every silence,
seeking word and melody;
there’s a dawn in every darkness
bringing hope to you and me.
From the past will come the future;
what it holds, a mystery,
unrevealed until its season,
something God alone can see.

In our end is our beginning;
in our time, infinity;
in our doubt there is believing;
in our life, eternity.
In our death, a resurrection;
at the last, a victory,
unrevealed until its season,
something God alone can see.
(Hymn of Promise, Natalie Sleeth)

Gardens are places where the veil is thin, and we can see beautiful imagery of incomprehensible truths. When you start seeing signs of new life burst forth this spring, I hope you will join me in marveling at nature’s foreshadowing of the coming joy when “up from the earth, the dead will rise like spring trees clothed in petals of white…and we will always be, always be, always be with the Lord.” (Remember Me, Andrew Peterson)

Come Lord Jesus.

Grief is like a Hurricane

Ethan’s Mom: Yesterday was the 13th anniversary of Hurricane Katrina’s devastating impact on the Gulf Coast. I lived in Long Beach, Mississippi, from birth until college. In 2005, I was in my last year of graduate school in Nashville. My parents and grandparents still lived in Long Beach. We all watched the meteorologists as they predicted the path of this monster storm until it became clear she was headed straight for the Mississippi Gulf Coast. By the time I woke up from a fitful night’s sleep on the morning of 8/29/05, the community that I knew and loved had been gutted. I remember vividly being at my internship that afternoon, checking the initial damage reports and reading a single sentence that broke my heart, “First Baptist Church washed away.” I had always daydreamed of being married in the same church where my parents said their vows and where I was baptized. It was gone. Totally and completely leveled, as were the homes of quite a few childhood friends and/or their parents. In less than 24 hours, the entire Mississippi Gulf Coast was demolished, and neighboring New Orleans was underwater.

I was unable to take a day off my internship until October. I flew home to maximize my time there, and I remember watching through tears out the window as the plane landed – so many blue tarps, so many empty lots. The southernmost portions of the town were still barricaded, but my mom, as the church secretary, had a pass to visit the site of the church with me that weekend. Piles of rubble. The beautiful stained glass from the mosaic in the narthex lay mixed in with twisted metal, lots of paper debris, and an overturned piano. Only the cross-shaped steeple lay intact on its side. The church sat at the south end of main street and surrounded by residential areas, but you wouldn’t know it. It literally looked as if a bomb had exploded. Nothing was even recognizable.

My parents moved to Birmingham, very near to us, in 2011. In the times I visited my family between 2005-2011 there was a lot of change. The roofing men were in constant demand. Infrastructure was being rebuilt. FBC bought land further inland and built a large multipurpose sanctuary/gym/education building. The toppled steeple stands out front. Friends and acquaintances bought or built new houses. Progress came, but slowly. Still along the shore, things looked wild and depressing. It was better, for sure. No one needed disaster relief volunteers serving food or water or boxes of sheets and towels for their temporary “Katrina cottage” FEMA shelters. There wasn’t an “emergency” but the community was still in the early stages of healing: cleaning out, taking stock, and beginning to plan what they would do next.

My 20th high school reunion was this summer, and I debated long and hard about going. I had not been to the Coast since 2013. In the end, several people I wanted to see in person were attending, and it was a good chance to take the kids to the beach. So off we went.

We stayed in a little guest cottage off a main thoroughfare in Long Beach, which was so much nicer than a hotel. We had room to spread out with the kids, and it felt more like a visit home by staying in a familiar neighborhood. I enjoyed (much more than the kids did, I’m afraid) sharing stories and memories from my childhood. We drove by my old house and elementary school, both of which survived the storm with relatively little damage. I took them to my favorite po-boy restaurant, which was rebuilt almost exactly the same as it was. We dug in the sand and waded in the water that was part of my history in so many ways.

And yet, there were times when I was completely discombobulated. A beautiful town green sat in the middle of main street where an elementary school had always been. Stores were closed; restaurants had moved. Driving along the beach was still a navigational challenge because landmarks I had depended on for years and years were still gone. In fact, most of the lots closest to the beach are still vacant. They don’t have the wild, grown over look as much but they are still vacant. I would be where I knew I had been many, many times before but have no idea where I was.

It was so familiar and so different at exactly the same time.

On the drive home, it occurred to me – that is a very fitting analogy of my life at this point. In 10 days, we will mark 18 months without our precious Ethan. His death has changed me in a way that nothing else ever has, or maybe ever will. Last spring, our world exploded. Everything was affected – our marriage, children, extended family, friends, community, and even (especially) our faith in God. All at once, NOTHING looked like it did, or even remotely like it should. The wreckage and debris from those early weeks and months can be described as nothing but trauma. It was so overwhelming, I could not even begin to think about rebuilding my life or feeling any joy again. People wanted to share stories of friends who were further post-loss and living productive lives, and I couldn’t even comprehend how that could be. I heard people recommend journaling to begin to process my feelings – that was impossible, I couldn’t even begin to pick up a pen most days. All that I could process was basic survival mode.

Slowly, over the past year, we have begun the process of rebuilding our life and our family. We resumed being the primary caregivers for our surviving children. We returned to church, and eventually I made it to the grocery store and the beauty salon. My husband returned to work full time, and I fill in at the hospital when staffing needs arise. After a few months, I was able to read and pray again, and new infrastructure could be laid. We faced all the “firsts” – holidays, birthdays, family vacations – and found touchpoints of the familiar amongst the grief that continues to be so confusing at times.

The thing about my trip home this summer is that the evidence of Hurricane Katrina and the wreckage she inflicted was still very apparent to me. It is a city with a broken past that endured a difficult season of growth. It is not the Long Beach of my youth, but it is still home. After the devastation of 2005, some places were repaired or rebuilt. Other places I saw on our visit were brand new construction, even some really nice and beautiful places. Still other places were empty and awaiting redemption.

“Awaiting redemption” makes me think of the Friendship Oak. A seedling when Columbus sailed to America, this beautiful, enormous live oak tree used to be the crown jewel of a local college and a favorite place of mine. I wanted to take the kids to see it, but instead we pulled up to a decaying tree surrounded by “Keep Out” tape. There is no way to repair, replace, rebuild, or improve on the Friendship Oak until Jesus restores creation to its full glory, and I know there will be places like that in my life as well. Things that just will not be right until I see Ethan again. But in the beginning, that felt like all there was left to my life. Truthfully, that was how I wanted it. What kind of a mom “heals” from her son? Now, almost 18 months later, I can finally see that I am not healing from Ethan or the experience of being his mother but from the storm surge that made landfall on March 10, 2017 – the tragedy that swept my child away from me and destroyed almost everything I had ever known. Almost.

Some things survived the storm intact, but I couldn’t see them for the wreckage. I am starting to identify some places from my “life before loss” that can be repaired, other things that can eventually be rebuilt in a different location, and still other lots which will be vacant for a long, long time to come. I hope that one day, I can even build some beautiful new spaces in my life, like the town green where my classmates gathered with our families and watched our children play in the splash pad under live oak trees that weathered the storm 13 years ago. I don’t know that I am there yet, but the fact that it is even starting to seem possible is only by the grace of God, the love of my family, and the support of a few close friends. Please don’t stop praying for us, checking in on us, and braving the sorrow with us as you are able. We are still very much under construction.

Meet Our Ethan

His Mom: Before we get into posting about grief and loss and the bigger picture, we want to introduce you to the little boy we refer to as “our little caboose,” Ethan Walter Jones. He is our fifth child. He has a twin brother, but he was the second to be born. Known as Baby B for several weeks, he was the baby up underneath my ribcage, closest to my heart. He spent pretty much the entire pregnancy in a transverse position, so his head was on the left side and his little bottom made a lump on the upper right side of my belly. There are a few extra stretch marks right there, where I patted his little heinie before I even met him. The twins’ birth story is complicated, and I don’t want that to be the focus of this post. Suffice it to say, he was born vaginally in a breech position with no pain medication. This was a little rough on both of us (understatement). My first glimpse of him scared me – he was a little blue and quiet. He spent about half a day in the NICU before being released to my room, with regular blood sugar checks for 24 hours. He was 3 oz bigger than his brother, and his hair was a fuzzy, reddish blonde. His head seemed small to me but the doctors assured me it measured fine. He liked being swaddled, and both boys preferred sleeping together in one bassinet.

He had difficulty nursing at times, and because of the low blood sugar levels, he received supplemental bottles to start. The supplements continued after he did not gain his birth weight back appropriately. Eventually, we found out that his feeding and weight gain concerns were due to a heart defect. At his one-month-old checkup, our pediatrician heard a heart murmur and got us into the cardiologist the next day. I held his tiny arms while they did an EKG and an ECHO and cradled him close as he was given a diagnosis of ventral septal defect. Again, we might write more about this later, but it was only one part of his story. His feedings would tire him quickly – both nursing and taking a bottle left him sleepy and dribbling milk down the sides of his mouth. He required a bib with every bottle, but he never did have any real acid reflux symptoms. He also never had baby acne – the only Jones child that can say their skin was clear at 6 weeks of age.

Ethan loved swinging in the old creaky baby swing we got for $25 at a consignment sale the week before our oldest was born. He wanted to be swaddled and didn’t wiggle out like his brother. His eyes were deep blue – the color where you can bet they will stay blue. He was a fussy baby – spending so much energy eating tired him out quickly and we suspect there may have been something else bothering him. His cry was higher pitched and easily identifiable to me. We spent a lot of time bouncing, walking, shushing, and rocking. He liked to be firmly patted on the back. I would swaddle, pat, and rock while singing his favorite song, “Twinkle Twinkle Little Star,” but his daddy would pat his back as Ethan was laid over his shoulder while walking around. His older siblings would bring him “the sleep sheep” when he cried – one of those stuffed animals that was supposed to help soothe babies to sleep. His oldest brother swore that Ethan loved the sleep sheep much, much more than his brother.

During the infrequent periods where he would be quiet and alert, he would stare at your face with those deep blue eyes, looking like he was studying every detail of your face. I said that his brother had an inquisitive look but that Ethan was studious. Both observant but with different tones, if that makes sense. They each loved to look at the blinds in their room, just behind the changing table. I guess the contrast made them visually appealing. I would kiss his tiny feet while changing his clothes. He also had a sweet little button nose perfect for kissing. One of his ears bent over a little at the top. His right eye didn’t close quite all the way sometimes when he slept. He loved his fuzzy pajamas that said Little Brother on them. He did not love bath time.

I loved holding them together. I would say to myself, this is the best feeling in the world – to be covered up with babies. It seems crazy, but they really seemed to enjoy being together as well. Of course, 2 months is too young to have your first social smile. One of my deepest yearnings is to see him smile one day. I called him my Big E, which was kind of silly because he was a tiny little peanut. So tiny he fell off the growth charts, but that was supposed to change after the open heart surgery to correct the VSD. He was just growing out of NB diapers and clothing as March approached.

There is so much more I wish I could tell you – those precious moments and memories we cherish with our other children that we never experienced with Ethan. I could go on for pages listing the questions that cross my mind daily – like would he have eventually grown to love his bath? I wonder every night as his brother toddles up the stairs saying “Bah! Bah!” with such excitement. But those are some of the memories from his two months on earth with us, and we hope you feel like you know Ethan a little better as you read about him in the posts that follow.

Why We Are Starting This Blog

What is the right way to begin this blog? Other than explaining the meaning behind its name, which we do in the About page, perhaps it is best to start by explaining why we would do this. Why write about the loss of our child? And even if we write about it, why publicly share something so personal?

When you lose a child, you experience several responses. You cry, a lot. You scream. You shake your fists. You sit in silence. You listen to reflective music. Eventually, you pray and read your Bible. And, at least for us, you also write.

You write because there are thoughts that need to be expressed which you cannot bring yourself to verbalize to anyone else, either because they are too dark or painful or meandering or because they don’t make any sense until they are loosened from your mind and expressed on a page.

Such thoughts are deeply personal. But often when we have “compared notes,” we find that we are thinking much the same things, though of course expressed in our own voices. And when you start reading what others have written about their losses, like Nicholas Wolterstorff in Lament For A Son or C.S. Lewis in A Grief Observed (works we highly recommend), you discover that they share some similar thoughts and experiences.

There is a kind solace in this discovery about grief. That you are not alone in your devastation. That it is okay to question everything. That though it feels like your world is ending, you are not crazy.

Yet, even with the similarities, each voice is unique. Each expression contains a different emphasis. Nothing is really repeated. And of course this should be expected because no two losses are exactly alike. We lost the same person, but my wife and I experience that loss in our own ways just as much as we share in that darkness.

So, one reason we have chosen to open this space is because our experiences and thoughts might help someone else who has the profound misfortune of facing such a loss. Perhaps one of our voices will speak to someone in a way that will provide them even a sliver of solace. If that happens, the surrender of privacy is worth it.

But the other reason to do this is that our son Ethan, even as short as his life was, deserves to be remembered. Some people seek to continue a person’s legacy through a charity fundraiser or a monument or a foundation. We are not geared in those ways. But we can write, and doing so in a public forum, no matter how small, inscribes Ethan’s name and his memory in one more place here with us until the day we see him again.